Geometry.Net - Health_Conditions: Sturge-weber Syndrome

NINDS Sturge-Weber Syndrome Information Page
sturgeweber syndrome and craniofacial resources, clinics with genetic counselors and geneticists, links to national and international support groups
http://www.ninds.nih.gov/health_and_medical/disorders/sturge_doc.htm
Sturge-Weber Foundation - Welcome Friends
A support site for individuals and professionals dealing with sturge-weber syndrome, port-wine stains Category Health Conditions and Diseases sturge-weber syndromeThe SturgeWeber Foundations mission is to improve the quality of life for individualswith Port Wine Stains (PWS), sturge-weber syndrome (SWS) and Klippel
http://www.sturge-weber.com/

Extractions: Home About Partners Contact Welcome to the Sturge-Weber Foundation Port Wine Stains (PWS), Sturge-Weber Syndrome (SWS) and Klippel-Trenaunay Syndrome (KT). The Foundation strives to meet this goal by providing worldwide education and support and by facilitating research that could ultimately lead to a cure. On this site you will find an overview of the programs and activities the Foundation provides for the public and our members. The site also includes the latest information on these syndromes as well as details about upcoming Sturge-Weber Foundation events. The SWF Annual International Conference will take place in Denver, Colorado July 11-13, 2003. click here for more. register online register fax/mail ... Conference Brochure The NEW SWF Bulletin Board is here!!
Pediatric Database
A definition of sturgeweber syndrome, the epidemiology, pathogenesis, pathology, clinical features, investigations and management.
http://www.icondata.com/health/pedbase/files/STURGE-W.HTM
The Contact A Family Directory - STURGE-WEBER SYNDROME
printer friendly. sturgeweber syndrome. home. more about us
http://www.cafamily.org.uk/Direct/s63.html

Extractions: printer friendly STURGE-WEBER SYNDROME home more about us in your area conditions information ... how you can help search this site Sturge-Weber Syndrome: Encephalofacial Angiomatosis This is a congenital disorder involving the brain, skin and eyes. Angiomas, (collections of abnormal blood vessels) occur in the meninges (coverings) of the cerebral cortex, usually on one side of the brain. affected individuals frequently develop Epilepsy which may be partial, affecting just one side of the body and hemiparesis (weakness on that side) may also develop. some individuals have learning difficulties. The condition is associated with a 'port wine' stain usually confined to half the face in the distribution of the branches of the trigeminal nerve. It may sometimes be bilateral or other parts of the body may also be affected. Occasionally no port wine stain is present. Associated eye conditions, most commonly choroidal angioma or glaucoma may be present.
Family Village -- Sturge-Weber Syndrome
Find sturgeweber syndrome resources. Features phone contacts, links, a description of the disorder, forums, discussions, and clinical articles. sturge-weber syndrome. Related Disorders Sturge-Weber-Dimitri Syndrome,
http://www.familyvillage.wisc.edu/lib_stur.htm

Extractions: Website: http://www.sturge-weber.com/ The Sturge-Weber Foundation is a clearinghouse for information concerning Sturge-Weber Syndrome, Klippel Trenaunay, and Port Wine Stain Birthmarks. The Foundation provides support for parents and individuals with all three syndromes, educates the general public, medical profession, and government agencies, and funds research. The Foundation has local support groups and a directory in the form of area representatives and international resource contacts. They will assist individuals who wish to start a local chapter in their area and will provide parent-to-parent matching after receiving a signed permission form. The Sturge-Weber Foundation publishes a quarterly newsletter
Sturge-Weber Foundation - Welcome Friends
A support site for individuals and professionals dealing with sturgeweber syndrome, port-wine stains and Klippel Trenaunay. The Foundation acts as clearing house for information and a focus for research.
http://www.Sturge-Weber.com

Extractions: Home About Partners Contact Welcome to the Sturge-Weber Foundation Port Wine Stains (PWS), Sturge-Weber Syndrome (SWS) and Klippel-Trenaunay Syndrome (KT). The Foundation strives to meet this goal by providing worldwide education and support and by facilitating research that could ultimately lead to a cure. On this site you will find an overview of the programs and activities the Foundation provides for the public and our members. The site also includes the latest information on these syndromes as well as details about upcoming Sturge-Weber Foundation events. The SWF Annual International Conference will take place in Denver, Colorado July 11-13, 2003. click here for more. register online register fax/mail ... Conference Brochure The NEW SWF Bulletin Board is here!!
Sturge-Weber Foundation - About SWS
What is SWS? sturgeweber syndrome (encephelotrigeminal angiomatosis) isa congenital, non-familial disorder of unknown incidence and cause.
http://www.sturge-weber.com/aboutsws.htm

Extractions: Home About Members Contact What is SWS? Sturge-Weber Syndrome (encephelotrigeminal angiomatosis) is a congenital, non-familial disorder of unknown incidence and cause. It is characterized by a congenital facial birthmark and neurological abnormalities. Other symptoms associated with Sturge-Weber can include eye and internal organ irregularities. Each case of Sturge-Weber Syndrome is unique and exhibits the characterizing findings to varying degrees. Facial Birthmark The most apparent indication of Sturge-Weber Syndrome is a facial birthmark or "Port Wine Stain" present at birth and typically involving at least one upper eyelid and the forehead. Much variation in the size of the stain has been reported and may be limited to one side of the face or may involve both sides. The stain, varying from light pink to deep purple, is due to an overabundance of capillaries just beneath the surface of the involved skin. In persons with dark pigmentation, the stain may be difficult to recognize. In rare instances, there is an absence of a Port Wine Stain. Neurological Abnormalities Neurological concerns relate to the development of excessive blood vessel growth on the surface of the brain (angiomas). These are located typically on the back (occipital) region of the brain on the same side as the port wine stain. These angiomas create abnormal conditions for brain function in the region. Seizure activity is the most common early problem, often starting by one year of age. The convulsions usually appear on the opposite side of the body from the Port Wine Stain and vary in severity. Vigorous attempts are made to control the seizures with medication. A weakening or loss of the use of one side of the body (hemiparesis), may develop opposite to the port wine stain. Developmental delay of motor and cognitive skills may also occur to varying degrees.
Sturge-Weber Syndrome_Discussion
Last update Wednesday, May 07, 1997 54726 PM sturgeweber syndrome (or disease) is a congenital vascular malformation affecting the head, face, and brain.
http://radlinux1.usuf1.usuhs.mil/rad/home/cases/sw_dis.html
Sturge-Weber Syndrome_Discussion
sturgeweber syndrome. sturge-weber syndrome (or disease) is a congenitalvascular malformation affecting the head, face, and brain.
http://rad.usuhs.mil/rad/home/cases/sw_dis.html
Sturge-Weber Syndrome Internet Mailing List
http//www.familyvillage.wisc.edu/coffee.gif. The Family Village OnLineDiscussion Groups. SWS-Support sturge-weber syndrome support list.
http://www.familyvillage.wisc.edu/lists/sturge-weber.html
Sturge-Weber Syndrome
Image that's a link to Genetics Education Center Support Page SturgeWebersyndrome. sturge-weber syndrome Support Group of New Zealand.
http://www.kumc.edu/gec/support/sturge.html

Extractions: (NFSW), see also English version Sturge-Weber Syndrome Support Group of New Zealand Sturge-Weber syndrome family web page, regarding Sturge-Weber Syndrome (SWS), Kippel-Trenaunay Weber Syndrome (KTWS), and Port Wine Stains (PWS) Sturge Weber Foundation , UK Professional Genetics Societies Genetic clinics, centers, departments
Definition For:Sturge-Weber Syndrome (Encephalo-facial Angiomatosis)
sturgeweber syndrome (Encephalo-facial angiomatosis). Chapter 28Hemangiomas of the face in area of trigeminal nerve innervation
http://www.kumc.edu/instruction/medicine/pathology/ed/keywords/kw_sturge_w.html
Special Child: Disorder Zone Archives - Sturge-Weber Syndrome
sturgeweber syndrome. Introduction. sturge-weber syndrome (SWS) is a congenitaldisorder characterized by a facial birthmark and neurological abnormalities.
http://www.specialchild.com/archives/dz-016.html

Extractions: Archives Sturge-Weber Syndrome Introduction Sturge-Weber syndrome (SWS) is a congenital disorder characterized by a facial birthmark and neurological abnormalities. It is the result of a malfunction of the development of blood vessels (excessive growth) over a portion of the brain, usually the back (occipital). The cause of SWS is unknown, however, it has been determined that it is not the result of anything that the mother did or consumed during her pregnancy. SWS is not hereditary; it is considered to be the result of a spontaneous mutation. It is believed that one cell is affected some time during fetal development, and as that particular cell divides, the error is then duplicated in subsequent cells. If a cell is affected during the early stage of development, then the effects will be more severe, as more cells will carry the error. The incidence of SWS is unknown (and is probably underdiagnosed and underreported), however, the Sturge-Weber Foundation has just under 1,000 families involved with their organization. Features and Characteristics Facial birthmark Excessive blood vessel growth on the surface of the brain Seizures Hemiparesis (weakening or loss of use of one side of the body, opposite the birthmark)
Sturge-Weber Syndrome, Cincinnati Childrens Hospital Medical Center
conditions and diagnoses. sturgeweber syndrome. What is sturge-weber syndrome? Sturge-Webersyndrome is a rare disease with no recognized hereditary component.
http://www.cincinnatichildrens.org/Health_Topics/Your_Childs_Health/Hemangiomas_

Extractions: Sturge-Weber syndrome is a rare disease with no recognized hereditary component. It consists of a red discoloration (portwine stain) involving the skin on the face. Usually the eyelids are also involved. The mucous membranes (lining of the mouth and nose) and the meninges (covering of the brain) can also be affected. The cause of Sturge-Weber is unknown and there are no known preventive measures. Return to Top What are the symptoms?
Sturge-Weber Syndrome, Cincinnati Childrens Hospital Medical Center
sturgeweber syndrome. Related Areas What is sturge-weber syndrome? Sturge-Webersyndrome is a rare disease with no recognized hereditary component.
http://www.cincinnatichildrens.org/Health_Topics/Your_Childs_Health/Hemangiomas_
Sturge-Weber Syndrome
Subscribe now . sturgeweber syndrome. sturge-weber syndrome rarely affectsother body organs. Treatment for sturge-weber syndrome is symptomatic.
http://healthlink.mcw.edu/article/921988762.html

Extractions: Subscribe now >> Sturge-Weber syndrome (also called encephalotrigeminal angiomatosis) is a congenital disorder characterized by a birthmark and neurological abnormalities. Symptoms of the disorder, which vary widely among patients, may include eye and internal organ irregularities. The most apparent symptom is a facial birthmark or port wine stain which is present at birth and usually involves at least one upper eyelid and the forehead. The stain, varying from light pink to deep purple, is caused by an overabundance of capillaries just beneath the surface of the affected skin. Neurological symptoms include excessive blood vessel growth on the surface of the brain (angiomas). These angiomas are typically located on the back or occipital region of the brain and cause abnormal conditions for brain function. Seizures are a common early occurrence, often starting by one year of age, and may worsen with age. The convulsions usually appear on the opposite side of the body from the port wine stain and vary in severity. A weakening or loss of use of the side of the body opposite the port wine stain (hemiparesis) may also develop. Developmental delay of motor and cognitive skills may occur. Glaucoma (increased pressure within the eye) may be present at birth or develop later. Buphthalmos (enlargement of the coatings of the eye) may also occur in the eye that is affected by the port wine stain. Sturge-Weber syndrome rarely affects other body organs.
Sturge-Weber Syndrome
sturgeweber syndrome, Book, Home Page.
http://www.fpnotebook.com/DER164.htm

Extractions: Home About Links Index ... Editor's Choice Paid Advertisement (click above). Please see the privacy statement Dermatology Pediatrics Acne ... Ophthalmology Sturge-Weber Syndrome Fungus Candida Diaper Dermatitis Hematology and Oncology Nevus Sebaceus of Jadassohn ... Miliaria Assorted Pages Aplasia Cutis Congenita Mongolian Spot Smooth Muscle Hamartoma Subcutaneous Fat Necrosis Sturge-Weber Syndrome Book Home Page Cardiovascular Medicine Dental Dermatology Emergency Medicine Endocrinology Gastroenterology General Medicine Geriatric Medicine Gynecology Hematology and Oncology HIV Infectious Disease Jokes Laboratory Neonatology Nephrology Neurology Obstetrics Ophthalmology Orthopedics Otolaryngology Pediatrics Pharmacology Prevention Psychiatry Pulmonology Radiology Rheumatology Sports Medicine Surgery Urology Chapter Dermatology Index Acne Allergy Bacteria Blister Cardiovascular Medicine Dermatitis Dry Endocrinology Environmental Injury Examination Ophthalmology Fungus Hair Hematology and Oncology Hyperplasia Infectious Disease Laboratory General Nails Parasite Pediatrics Pharmacology Pigment Prevention Procedure Psychiatry Rheumatology Sebaceous Sports Medicine Sweat Symptom Evaluation Wart Page Pediatrics Index Acne Milia Acne Neonatorum Acne Pustular Melanosis Aplasia Cutis Congenita Bacteria Perianal Blister Erythema Toxicum Blister Suction CV Hemangioma CV Nevus Flammeus CV Nevus Simplex Dermatitis Diaper Endo Klippel-Trenaunay-Weber Eye Sturge Weber Fungus Diaper Hemeonc Nevus Sebaceus Hyperplasia Seborrhea Mongolian Spot Smooth Muscle Hamartoma
HONselect - Sturge-Weber Syndrome
English sturgeweber syndrome, - Neuroretinoangiomatosis - Phakomatosis, Sturge-Weber- Angiomatosis Oculoorbital-Thalamic Syndrome - Encephalofacial
http://www.hon.ch/HONselect/RareDiseases/C04.557.645.375.850.html
Sturge-Weber Syndrome
sturgeweber syndrome. This response submitted by Bodo Kirtz on 4/12/96.Author's Email We have a son born in 1991 with Struge-Weber Syndrom.
http://neuro-www.mgh.harvard.edu/neurowebforum/ChildNeurologyArticles/SturgeWebe
Sturge-Weber Syndrome (www.whonamedit.com)
sturgeweber syndrome The term Schirmer's syndrome is used to indicate the asociationof early glaucoma (hydrophthalmia) and sturge-weber syndrome.
http://www.whonamedit.com/synd.cfm/1764.html

Extractions: Angioma capillare et venosum calcificans, angiomatosis encephalofacialis, cerebrocutaneous angiomatosis, congenital neuroectodermal dysplasia, cutaneocerebral angioma, cutaneodermal angioma, encephalocutaneous angiomatosis, encephalofacial angiomatosis, encephalofacial neuroangiomatosis, encephalotrigeminal syndrome, encephalotrigeminal angiomatosis, encephalotrigeminal vascular syndrome, facial-meningeal angiomas, fourth phacomatosis syndrome, meningeal capillary angiomatosis, meningofacial angiomatosis, meningo-oculofacial angiomatosis, neuroangiomatosis encephalofacialis, neurocutaneous syndrome, neuroectodermal hamartoma, neuro-oculocutaneous angiomatosis, neurooculocutaneous syndrome, naevoid amentia, trigemino-encephalo-angiomatosis, phacomatosis syndrome, vascular encephalotrigeminal syndrome.

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